As a physician, would you like to enrol a patient with a complement-mediated kidney disease or a TMA in the CORE registry?
paediatric patients with confirmed (genetically and/or by biopsy) aHUS, TTP, C3G or MPGN
All adult patients with confirmed (genetically and/or by biopsy) aHUS, TTP, C3G or MPGN
As a central German registry, the CORE registry is intended to enable the long-term development of new diagnostic and therapeutic approaches based on precisely characterised disease courses as well as epidemiological and genetic data.
Optionally, participants can consent to the storage of biomaterial (blood and urine), which is kept in local biobanks. This biomaterial is intended to enable translational research approaches of the CORE registry, linking the clinical registry with basic molecular research.
Laboratory, clinical and medical history parameters are linked with histopathological findings. Clinical data are recorded systematically at enrolment and at regular intervals during follow-up. Patient samples such as urine, serum, plasma or tissue are preserved and catalogued in a modern biobank at University Hospital Cologne (or the respective site).
Would you like to participate in the registry as a centre yourself?
Would you like to enrol a patient in the registry?
Then please get in touch with us:
Director: Prof. Dr. Thomas Benzing
Prof. Dr. Paul Brinkkötter
Prof. Dr. Elke Neumann-Haefelin
Dr. Lucas Kühne
Dr. Lena Pickert
Kerpener Straße 62, 50937 Cologne, Germany
Phone: +49 221 478-97222
Director: Prof. Dr. Jörg Dötsch
Prof. Dr. Lutz Weber
Prof. Dr. Sandra Habbig
Kerpener Straße 62, 50937 Cologne, Germany
Phone: +49 221 478-42101